Things have been improving, albeit, slowly. I made it through my six weeks of recovery for the bladder and hysterectomy. I was excited to "get busy" on Valentine's Day as it marked my 6 weeks. I'm happy to say that it went well. Very well. I'm relieved to have the leaking urine problem resolved. In the times that we have had intercourse since I have actually been able to reach orgasm, which is so awesome. I was so afraid that I would never be able to again. It takes me longer than it used to, but by golly I get there.
With all the numbness, I was nervous that I wouldn't be able to feel anything. Strangely enough, I really have been regaining some sensation; little by little. I've had a couple of days of awful electrical nerve pain that comes in waves; similar to contractions. They would come every 30-45 seconds. Nothing seemed to quell them. I used Motrin but I don't think it did anything. The pains finally subsided and the next day it seems that I regain more sensation. Sometimes it happens like that and sometimes I just happen to notice a tiny area where I can feel light touch again. I'm actually hopeful now that I can regain more sensation as time goes on.
As for foot and leg strength, it to seems to be getting better. My left foot has the burning sensation and almost hypersensitive to touch. I can walk a bit fast and do more each day. I really should start up a program. I have it in my head to do it, but to get up and actually do it is another issue. We have a trip planned to go to England and I've got to get stronger to make it through that.
My bowel issues are still there. I'm hoping that if I can get more sensation and build up more pelvic strength then any incontinence for my bowels will go away. Right now I'm more constipated and have to aid the matter out. I do notice more strength in that area though. I'm hoping for more improvement there as well. I think since I got my uterus out of the way and the bladder fixed for the most part, I have more hope to feel better and more normal. I realize that this is my new normal, but I'm not depressed and hopeless about it anymore.
Since the bladder repair I do still have residual urine in my bladder after initially emptying. I usually just lean over and push on my bladder and get the rest out. Sometimes I do have to stand up and try to go again. So far I haven't had anymore bladder infections. I have only leaked a few times with hard coughing. I had a cold and another time when I vomited, but those are the only times. I've been up and down the stairs with no issues! This makes me very happy.
Hello Sarah. I am so sorry to read of your struggles with CES. I have had the condition since 1999 and have recently started a new blog myself, detailing my struggles with CES. I sincerely hope you continue to improve and can once again lead a full and happy life. You have a great day!
ReplyDeleteMark G. Pakulak
Runaway Bay, TX
http://cesnightmare.wordpress.com/
Thanks for stopping by. I took a look at your blog and you are doing a fantastic job describing what CES is. I now when I mention that I have it, I get blank stares and no one knows what it is.
DeleteI am doing incredibly well and hopefully can continue getting stronger and stronger.
That is awesome to hear! Keep fighting the good fight and hopefully you will be good as new real soon! :)
ReplyDelete